QOL 02 QOL QOL UI AI EAThoracotomy TTThoracoscopy TS QOL EA type-c y score UI 3 AI 8 School score QOL score 12

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1 OK US CT MRI 17 cm 0.16 g/kg/day OK ke 2 2 ke 3 1 1,150 ml 13 US OK TJ-28 TJ TJ TJ TJ TJ ) 2) 3) 1) 2) 1) 3) 1) 7 QOL EQ-5D , QOL QOL QOL QOL 9 2 CTS QOL CTS CT 4 QOL KINDL QOL CTS

2 QOL 02 QOL QOL UI AI EAThoracotomy TTThoracoscopy TS QOL EA type-c y score UI 3 AI 8 School score QOL score 12 UI AI 88.8 UI 1.0 AI UI 8.0 AI 7.5 UI 25.0 AI 0-2 TT TS UI 1 AI TT 24 TS 13 QOL TT 1-y score School score TS y score 0-10 TT 6.5 TS 4.6 p.05 School score 0-14 TT 11.5 TS 11.3 p ns EA TT/TS QOL TS 1-y 05 QOL score TT School score 03 Nuss 1 / LAPEG LAPEG 9 LAPEG cm 11.9kg 15 kg 15 Nuss inch 3.6 kg T 1 10 LAPEG 15 kg 13 QOL QOL

3 ,600 1,950 mm 90 mm mm 07 1) 2) 1) 1) 1) 1) 1) 2) animal assisted therapy AAT 120 AAT AAT AAT ) 2) 1) 1) 1) 1) 1) 1) 2) 2) 2) 2) 2) 2) 2) 2) 2) 2) 2) 2) 10 hair tourniquet syndrome 1 hair tourniquet syndrome 1 8

4 body stalkanomaly 1 1) 2) 1) 1) 1) 1) 1) 1) 1) 1) 1) 2) BSA BSA 12 Klippel- Trenaunay 1) 2) 1) 1) 1) 1) 1) 1) 1) 1) 1) 2) clm Klippel-Trenaunay KTS QOL clm KTS KTS1 clm QOL ) 2) 3) 4) 1) 1) 2) 2) 3) 4) 4) 4) Klippel-Trenaunay 7 ADL 5.2 kg QOL 14 QOL Hirschsprung 14 5 Bristol stool form scale Type g/

5 hypoganglionosis Hypoganglionosis cm TPN 1 7 4,802 g 60 cm Reversed Bishop-Koop 5 13 kg TPN GH 16 hypoganglionosis Caliber change AChE Hirschsprung hypoganglionosis 1 17 QOL CIIP 1 CIIP QOL 23 CIIP cm QOL 18 TPN TPN cm 19 TPN TPN

6 QOL HPN QOL HPN cm HPN cm 150 cm 2 HPN 5 B12 HPN B12 QOL HPN 22 QOL HPN QOL 2010 HPN HPN HPN QOL 21 1) 2) 3) 1) 1) 2) 3) 3) 3) 3) 3) 3) 3) TPN TPN CVC A CVC A CVC A

7 ) 2) 1) 2) 2) 1) QOL 1 DIC A 28 A A ) 2) 3) 1) 1) 2) 2) 3) NPO NPO 1) 2) 3) 4) 5) 6) 1)2) 1)3) 1)4) 1)5) 1) 1)6) NPO NPO 3 1 2

8 NPO 29 1) 2) 1) 2) 2) 1) 1) 1) 1) 1) HPS 7 5 HPS CLS SpO ) 2) 3) 1) 1) 1) 2) 3) 3) 3) ,804 g Apgar 6/9 Altman type IV LTS

9 LTS QOL C DORV DORV 7 QOL QOL 35 QOL 1 22q ACTH 2 QOL 36 1) 2) 1) 1) 2) 1) 1) 1) QOL fecal infusion FI /FI 5 A FI 5 B A/B 2 3 / A 10.8 /7.1 kg B 8.6 /7.2 kg A 5 B 1.2 A 3 B 0 FI 37 Hirshsprung 1 Hirshsprung 7 2 Hirshsprung pull through pull through QOL Hirshsprung

10 ) 2) 1) 1) 1) 1) 1) 2) 1) 1) 1) 1) cm 67.2 kg BMI 24.5 kg/m 2 Lloyd-Davies exaggerated position J 7 9 POD 1 POD 2 POD 4 VAC system bfgf POD ,614 g 3,380 g 8 6,200 g ,165 g 3,498 g 7 7,075 g ) 2) 1) 2) 2) 2) 2) 1) QOL QOL

11 Na 1 1) 2) 3) 1) 1) 2) 2) 2) 2) 3) 1) ,000 ml Na Cl 5 GCSE2V2M4Na 118 mmol/ l K 1.9 mmol/ l Cl 67 mmol/ l Na 0.5 meq/l/hr 1 6,000 ml Stage IV 45 Gy Gy Treiz 220 cm ) 2) 1) 2) 1) 1) PEG PEG PEG 10 Direct 9 Introducer cm 132 cm kg 18.5 kg PEG 1 45 GET GET GET GET 2 GET GET 1 GET

評価結果報告書の概要版(平成20年度)

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