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11 Establishment of the Nationwide Association for Children Persons with Severe Physical and Intellectual Disabilities and the Background of Its Activities KUBOTA Yoshie Abstract: The Nationwide Association for Children Persons with Severe Physical and Intellectual Disabilities has greatly influenced the legislative system in Japan in regards to children persons with severe physical and intellectual disabilities from the postwar era. This study aims to clarify the association s activities that have influenced public policy concerning children persons with severe physical and intellectual disabilities and the background behind these activities. The study is based on an analysis of writings composed by KITAURA Masako the association's director and president, and collected since the associations establishment fifty years ago, as well as articles from Parents Gathering, the association s magazine. The following three points were clarified. First, the association has built deep bonds with various circles with the concept of no disputes to ensure that there is somewhere for children with severe disabilities to live after their parents have passed away. Second, measures to reduce the number of patients in National Sanatoria helped the association to realize its demands to improve facilities. Third, besides advocating respect towards those with severe disabilities, the association s philosophy has emphasized the responsibilities of parents themselves, but, given current social attitudes, it may be difficult for the association to continue based on such a philosophy. Keywords: severe physical and intellectual disabilities, social movement, welfare of persons with disabilities, social work, disability organizations
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