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Transcription:

Perspective on study of support for families with children with Pervasive Developmental Disorders Kaori NODA Support of the pervasive developmental disorder (PDD) is regarded as important. Especially, it is reported that the families of the child with PDD hold various difficulties and the support for them is as important as that for the child with PDD. Therefore in this article bibliographical survey is conducted. The four important factors of the support for families are considered, i.e. provision of information, encouragement of coping with, psychological support for the families, and the cooperation by the various types of supporters. Through such these support, the families come under as following positive influences. They are reduction of a feeling of burden and a feeling of self-reproach, acquisition of the anti-stress robustness, and a change of the recognition for the family member with the obstacle. A combination of important supports is expected to mitigate families difficulties and improve their quality of life. pervasive developmental disorder PDD PDD American Psychiatric Association, ) PDD PDD.%. Chakrabarti et al ) ) PDD PDD PDD Chakrabarti et al., ) ) PDD PDD PDD

PDD PDD PDD PDD PDD PDD PDD PDD PDD PDD PDD PDD PDD Kasari et al., ) ), a ) PDD PDD Hastings, R.P., ) Hastings, R.P., et al., ) Koegel et al., ) a ) b ) Hastings, R.P., ) Family-Centered service

Johnson ) ) ) ) PDD ) PDD ) ) PDD Roaddes-Smucker, ) Pain, ), Koegel, et al, ) Shelton, ) )

) PDD PDD ) PDD Dunst ) Donabedian, ) PDD McCarthy ) PDD MaGill,P.,et al, ) Liptak ) PDD, )

) ) ) King,G.,et al, ) PDD Hastings, ) Kasari et al, ) ) b ) PDD PDD PDD PDD ) PDD PDD PDD

PDD ) American Psychiatric Association Diagnostic and statistical manual of mental disorders, th ed, Text Revision. (DSM-IV-TR). : American Psychiatric Association. DSM- IV-TR ) Chakrabarti, S., Fombonne, E. Pervasive developmental disorders in preschool children JAMA,, -. ) ) http://www.mhlw.go.jp/topics///tp- b.html ) Kasari, C. & Sigman, M. Linking parental perceptions to interactions in young children with autism. Journal of Autism and Developmental Disorders,. ) ( ) Aigo, (), - ) a ( ) -. ) Hastings, R. P. Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research,, -. ) Hastings, R.P. & Brown, T. Coping Strategies and Impact of Challenging Behavior on Special Educators' Bornout. Mental Retardation, ( )- ) Koegel, R.L., Bimbela, A., Schreibman, L. Collateral effects of parent training on family interactions. Journal of Autism and Developmental Disorders, ( ), -. ) a ( ) -. ) Johnson, B.H., Fmily-centered care:four decades of progress. Families, Systeme, & Health,, -. ),,- ), ( ), - ),, - ).,, -. ) :,, -. ) Roades-Smucker, J.M. Managed care and children with special health care needs. Journal of Pediatrics and Health Care, -. ) Pain HCoping with a child with disabilities from the parents' perspective: the function of information Child: care, health and development, ( ), - ) Shelton, T.L. & Stepanek, J.S. Family-centerd care for children needing specialized health and developmental services. Bethesda, MD Association for the Care of Children's Health. ) -. ) ),, -. ) Donabedian, A. Defining and measuring the quality of health care. In R. P. (Ed.), Wenzel, Assessing quality health care Baltimore: Williams and Wilkins Perspectives for clinicians -. ) McCarthy, J.M. & Boyd, J. Mental health services and young people with intellectual disability:is it time to do better? Journal of Intellectual Disability Research,,-. ) MaGill,P., Papachristoforou, E., & Cooper, V., Support for family cares of children and young people with developmental disabilities and challenging behavior, Child: Care, Health and Development, ( ), -. ) Liptak, G.S., Orlando, M., Yingling, J., Theurer-Kaufman, K., Malay, D., Tompkins, L., Flynn, J. Satisfaction With Primary

Health Care Received by Families of Children With Developmental Disabilities. Journal of Pediatric Health Care, ( ), -. ) Dunst, C. & Dempsey, I. Family-Professional Partnerships and Parenting Competence, Confidence, and Enjoyment. International Journal of Disability, ( ), -. ) ). ) -. ). ) King, G., King, S. & Rosenbaum, P. Family-centred caregiving and well-being of parents of children with disabilities: linking process with outcome. Journal of Pediatric Psychology,,. )